Alzheimers disease, Childhood, Fathers Day, grief

Navigating the Grief Laden Alzheimer’s Journey

We moved my Dad to memory care this week. So much stuff happened between the decision and the move! Even though my daily life is not affected as much as my mothers, I feel a new type of loss at this stage. I was unprepared for it.

With Alzheimer’s disease, I find, there are layers of loss experienced. There is the slow loss as the person you love loses pieces of who they are, one by one, and you adjust in increments so small they are barely perceptible until one day you realize how much has changed. That is manageable. There is the anticipated loss, you know this disease is terminal, but you manage that grief in a way that allows you to be present for the loved one, the other family members, and your own commitments in life, so you don’t lose the gift of NOW. What I was not prepared for and am talking with God every day about, is the gut punch of putting this beautiful, wonderful person we love into the care and trust of others. Hugging my mom as she sobs the first time she walks through the door of her apartment without her husband of the last 64 years. Going home to my own house, sitting in a chair, knocked breathless by my own pain, my siblings’ pain, Mom’s pain, and wishing I could take it all away, but knowing it must be lived through. Lastly, thinking of the first night in his “apartment” wondering what Dad can think and feel. Is he lonely? Is he scared? This larger than life father of mine who always took charge and took care of us. This now frail yet brave man who understood somehow this choice was for his and his beloved wife’s health and well being, who went without a fuss. Who kissed my mom and said “I’ll see you when I see you.” In his little apartment room, does he see the familiar things we put on the walls, the quilt my Mom made that was on their bed for years, the afghan his own mother knitted 50 years ago draped on his new recliner? Does he find comfort in those things, or does it even register? I can’t even ask him because he won’t understand the question. There are so many layers of grief in this journey. Until we can visit in person, I will continue to pray for, and, as a friend put it, also pray to my father, sending all of the love that I have from my heart to his.

Childhood, Fathers Day, kindness, nostalgia

Reasons Why I Love my Dad #1: He believes in me

I was staring out the open window of my 2nd grade classroom at the Annunciation Catholic school. A lilac-scented breeze stole into the classroom as I was thinking of my Mother,after-school snacks and my favorite TV show. Soon the bell would ring, and I’d be free.

Sister Regina Marie was handing back English tests. When my name was called, I walked eagerly up to the desk. English was my favorite subject. I smiled when I saw my grade – 100 percent! Daddy would be proud.

“I do not believe you got 100% on this test without cheating.” Sister held her red grease pen aloft. Horrified, I watched her slash “F” over the test grade. 

My cheeks burned. I would die before I would ever cheat on anything. Desperate, I tried to erase it. But it smeared the grease pen “F” into a huge blob on the paper. Sister saw what I was doing and called me back up. She rewrote the “F” with a flourish and said, “Bring this back tomorrow with your parents’ signature.”

On the walk home, fear roiled my stomach, and something else – a helpless fury that screamed why? I didn’t do anything wrong. Sister says God sees everything. I looked skyward and wondered why He let this happen.

At home, I handed the paper over to my father. 

“Sister says sign this. I have to bring it back tomorrow.” 

He stared at the paper. I wondered; would I be spanked for this?

“You know the answers to these questions.” His piercing eyes held my tearful ones. “Did you cheat?”

“No!”

“I believe you.” 

It was Dad who returned the test paper to Sister, in person, and unsigned. That was the last I heard of it. Maybe God was watching out for me, after all, when He blessed me with such a kind and loving father. 

Dad and I in 2019, Rangeley, ME.
Childhood, Ukraine, Uncategorized

For Mary Yurdyga Juskow: Remembering My Ukrainian Grandmother

My paternal great-grandparents , Elik and Anna Yurdyga, emigrated to the US in 1910, from Ukraine. They were farmers in the old country, and they continued with that tradition, raising their own food on a farm in Upstate New York. My father has fond memories of time spent in the care of his grandparents as a very young boy. His grandmother spoiled him by sharing his grandfather’s precious preserved cherries with him, over his grandfather’s light-hearted protests. Once they had a rooster that attacked my father, and that bird promptly wound up on the Sunday dinner table. From listening to the stories, I gather they were very tough, but loving people who raised 8 children who all “made good” as my grandmother would say. One was an artist, one was a NY City career woman, two fought heroically for this country, some stayed in the Finger Lakes region, and some migrated to California. All of them contributed to the prosperity, values and success of this country. My grandmother, Mary Yurdyga, was the one I knew and loved best. She was a single parent before it was common, a hard-working waitress who raised three children, bought her own home with the tips she earned and saved, and supported herself and her children by taking in boarders. One of them became my grandfather, John Juskow. Mary Yurdyga Juskow is the reason why I most identify with my Polish-Ukrainian heritage. She enriched our lives with her wonderful Ukrainian cooking, and her green thumb, no doubt inherited from her parents. Oh the sweet babka, the tart kapusta, and golden brown pierogis fried in onions! Her flower gardens were legendary. She taught me to knit, how to grow marigolds, and once took me to Christmas Eve mass at St. Peter and Paul Ukrainian Catholic Church . I remember my white gloved hand in hers, the acrid scent of incense burning inside pots swung back and forth by the priest, who spoke and sang in the primal mysterious language of the old country. Grandma had distinctive features: She could look right into your soul with those piercing, deep brown eyes, magnified by thick glasses. She had a small, pert nose and a beautiful smile, paired with a sharp tongue and a core made of steel. She had a way of making me feel seen. Her house was the museum of my childhood; I spent hours admiring an oil painting made by her artist brother, of a gray horse standing in a field overlooking a valley. (I was obsessed from birth with horses) and a cast iron horse figurine purchased by her first husband, that sat nobly on a high shelf in her pristine parlor. When I was 11 years old, she gave them both to me and I still have them today.

In those days, people did not speak of the past, and so, I have no inkling of the hardships that drove them to America. If one reads the history of the Ukraine, the nature of the hardships can easily be imagined. And of course, today we can just turn on the news to see firsthand what these tough, brave people of mine are enduring.

My Ukrainian roots are aching. Every day I pray for the people who are suffering, yet fighting so hard. I have always been fascinated and proud of my Polish-Ukrainian heritage, and that old pride within is rekindled when I see that blue and yellow flag flying, and when I see people standing in solidarity with that tough, beautiful nation.

Grandma, wherever you are, I hope you see – we all made good, thanks to you. Today in honor of your memory, I am going to whip up some golumpkis for Sunday dinner, and continue praying for peace in Ukraine. Sharing a photo of my great-grandfather on his farm, holding my dad.

Elik Yurdyga, circa 1942, holding my father on the farm
Childhood, nostalgia, Summer, Uncategorized

The More Things Change, The More They Stay the Same

“Ma, I’m BORED!” How many times did I say that as a kid? Haunting my mother like a vulture, around the kitchen table on a muggy summer morning, while she sipped coffee from a green Fire King mug, penciling on her crossword, trying to find some peace. Without looking up, she’d say “I’ll give you something to do…” And I’d disappear out the door, bing, bing, bing, like Ricochet Rabbit, past the dog, dozing in the shade, past the back yard, through the tall grass, under the barbed wire fence and down the cow path before you could say “Lickety split!” (Do not ask me where that came from just now, the voices that speak to me from those days in ancient history must be heeded.) I most surely wound up catching minnows in the cool waters of the creek to put in Tupperware containers on the back step (Mom wouldn’t let us bring them in the house) And, sadly, it took me a couple of times to realize they couldn’t live in a bowl, simply for my entertainment. They were to be enjoyed alive and well, flashing, silver in the creek, darting back and forth, as minnows and children are meant to do.

Remember when the late spring/early days of summer, so anticipated, finally arrived? Freedom, sunshine, deep greens everywhere! Bird song in the morning, and crickets heard through the screens at nightfall as you lay awake in bed, thrashing at the sheets and the injustice of a too-early bedtime. Asking for one more drink of water, crying out “I can’t sleep!”in the hopes an adult would take mercy on you and set you free from the stifling bedroom in which you were trapped. Only to hear “Don’t make me come up the stairs!” Ah, those were the days. When the adults were downstairs, in charge, and you were not, but you could fall asleep knowing there were sentinels between you and the creatures of the night.

Fast forward almost 50 years. (How did THAT happen?) It’s a lazy Sunday, the day is full of possibilities, and I have all the freedom that being an adult on a beautiful late Spring day entails. I am in charge of myself, and the day stretches ahead. I’ve done the cup of coffee on the deck, observed a Flicker sitting in the grass, his bright eye turned up to the sky. I marveled at my knockout roses with their pink and red petals glistening with morning dew. I watched neon-yellow goldfinches perched on slender tall grasses, swinging back and forth with the breeze. I served the horse and donkey their morning grain, kissed their velvet noses, and inhaled the barn perfume, blend of hay, manure and leather. There are still hours of this beautiful day left to enjoy. And yet…

“Ma, I’m bored.”

“I can give you something to do…perhaps wash the dishes? Throw in a load of laundry? The bird cage is looking pretty grim…”

Just like old times, only I am the boss of me and the conversation is all in my head. If you will excuse me, the fields, woods and streams are calling my name!

Childhood, Fathers Day

My North Star

When we were kids my Father took my siblings and I, along with our Mother, on many hikes. Some were through woods and pastures, and some were up mountains, and he called each one an adventure. Over the years, I went from fresh-faced, willing participant to sullen adolescent/early teenager, who forged way ahead or dawdled way back so I could feel like I was alone and free of the bonds of my family. Eventually, I became an absentee teenager-with-a-job and friends who were more interesting to me at the time, and I begged off as many of those outings as I could. I had other, more interesting adventures to attend to. 

Fast forward 18 years or so.By then I was a parent, with two adolescent boys and a lot more perspective. It was January when I not so casually suggested to my father that we take a hike in the White Mountains. Now, the one thing I never got to do was hike alone with Dad. The closest I came to expressing my desire was buying him a “50 Hikes in NH” book when I was a teenager, and pointing out the Lonesome Lake overnight hike and saying “That one looks nice.”  Unfortunately, he was not a mind reader and I was not the most communicative teenager, and so, when we did hike it, the whole family went and I was probably 50% sullen and I think the most communicative I got was writing to myself, in my journal. Dad was up for the challenge, and we decided to go up Mt. Lafayette in July, hike up ,stay at Greenleaf Hut, then take the Franconia Loop Ridge Trail, and the Bridal Veil Falls trail down on our way out. I remember Dad looking me in the eye and saying “You’ll have to make sure you’re in shape for it.” To which I replied “Oh don’t worry about me!” A flash of my teenage self emerged. How many times would Dad say “You guys are marshmallows!”when we lagged behind on the trails. I’d show him. 

I spent the whole spring that year riding my bike and running like a madwoman and dropped about 10 lbs just to prove I was no marshmallow and be ready for that hike. The day arrived and Dad picked me up and we drove to the trailhead parking lot. Being Dad, he had to go through my pack to ensure I wasn’t carrying anything unnecessary, to ease the weight I was carrying. I’d be lying if I said I didn’t feel a little irritated at this intrusion and what I perceived as his doubt about my fitness level, aka marshmallow quotient.

 He held up a can of Diet Pepsi. “You’ve got water, you don’t need this.” 

“The Pepsi STAYS.” I growled. Fortunately for both of us, he shrugged and put it back.

We were geared up  like twins; hiking boots, knee socks, shorts, tee shirts, bandanas around our heads, water bottles dangling from the packs. Up the trail we went. The day was magnificent. Down in the valleys it was hot and humid, up on the leafy green trails the trees shaded us,  sunlight poked in hear and there, dappling everything, and the air smelled mossy and clean. We didn’t talk a whole lot, but the silence was companionable. This part of the trail didn’t hold much of a view, but occasionally the trees would part and we could see the view across the way. Dad had me stop at one of these views, so he could take a photo of me. I got a little dizzy looking out, but it passed and I didn’t think much of it at the time. We arrived at the hut by late afternoon, and had time to sit at a picnic table and relax. Later on the crew made a hearty dinner of beef stew and put on a little skit for the guests. Dad and I wandered over to the guest book, where we looked up an entry we had made back in 1977, from a family hike. It was gratifying to write a new, updated entry and add our two names to the book. Later on, I laid awake in the communal bunk area where the women slept, listening to some of them snoring loudly.I wondered if Dad was asleep.  I was really excited for the next day, and the Ridge trail, and looked forward seeing the Falls on the way down. 

We started out after breakfast and headed to the beautiful Franconia Ridge Loop Trail. We stopped to look at the expanse of the trail before us. The ridge trail crosses three mountain peaks, and is about 8 miles long. On that beautiful clear July day, we could see the ridge in its entirety. The trail is a narrow, rocky area, that drops off on either side into a 3000 foot expanse of dark green mountainside. The sky was a brilliant blue without a single cloud and it went on forever. It was beautiful, and terrifying at the same time. I took a deep breath and followed Dad onto the trail. We picked our way over and around rocks, and I tried, I really did. I tried to breathe, and look at and appreciate the view. Each time I made the mistake of looking down off to the side of the trail, my heart raced a little faster and my head felt a little lighter. I said nothing to my father, who walked ahead of me, confident and straight backed. After a little while, I could barely speak. He would talk and I would give one word responses, all the while resisting the urge to freeze and curl up into a little puddle of melted marshmallow. Gradually, I was crawl-walking, bent way over and scrambling over rocks, hand over hand. I wanted to glue myself to the trail.

Dad stopped and asked “Are you ok?” 

“Um, no, not really. I’m afraid of heights!” I had to admit it. I am good at hiding a lot of fears, but my sheer will was no match for this one. I felt like a failure. Defeat leaked in tears from the corner of my eyes.

“Take my hand.” 

I looked up, and there in front of me was my Father’s hand. He was still facing forward, holding his arm behind him. 

“You can do it, I’ll help you.” 

I grabbed his hand for dear life, and this is how we traversed the 1.7 miles of narrow ridge trail between Mt. Lafayette and Little Haystack Mountain that day. Dad walking, holding my hand behind him, me clutching the hand and half crawling, half duckwalking across the ridge. The whole time I glued my eyes to our entwined hands, listening to the voice of my childhood, the one that always knew what to do and say to get me through any hardship. The hand that held mine as we skipped down my childhood sidewalks together, the hand that brushed my long hair in the evenings when I was 7 years old, the hand that squeezed mine the day my first son was born, and the hand that would always be there for me in years ahead, during good times and bad. 

When I finally was able to walk upright again, we finished the ridge trail and headed down the Falling Waters trail. Once again the trees embraced us in their shady arms, and the steep views were hidden from us. The trail was not for marshmallows; it was very rocky and steep. We were both silent as we focused on keeping our footing, balance and slowing the speed of our descent. Partway down, Dad slipped and fell on the rocks. Instantly, I was at his side, and this time it was me offering my hand, and lifting him up. He was uninjured,  a little embarrassed, but we both smiled. 

“I’m impressed with your fitness,” he said. “I’m having a hard time keeping up with you!” I glowed at the praise. 

We stopped to rest at one of the beautiful falls that run parallel to the trail. We took off our boots and socks, and sat on a rock, dangling our feet in a pool. The falls roared to the left of us. Surreptitiously, I reached into my pack and slipped out the Diet Pepsi. I wedged the can between two rocks in the ice cold water. After a while, I removed the can and popped the top. The bite of the soda on my parched tongue was something I can still feel today. I offered the can to Dad, he took a sip and closed his eyes. 

“Boy does this hit the spot!” He looked at me, brown eyes shining and smiled again. “Good thing you didn’t listen to me and brought it.”  I smiled and looked over the water. I could have stayed there forever.

We reached the car a few hours later, ravenously hungry. “Let’s get pizza, I know a place,” Dad said. We wolfed down a whole pizza before driving home. 

I had dreams of doing a hike like that once a year with Dad. But, life goes on and gets in the way. We never did another overnighter. In all honesty, I don’t think we could have recaptured the magic of those two days if we tried. And, we did go on to do many other things, as family does. I could write a hundred essays more about our hikes, walks, snowshoeing and skiing adventures that have happened since. And maybe I will one day. 

Until then, this one’s for you Dad. You are my North Star. Nobody in this world will ever fill your shoes. Thank you and happy Father’s Day!